If Our Heads Weren’t Attached

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We’ve gotten into smoothies. Thanks to a recently acquired Ninja Blender (blatant product plug: it’s great and not all that expensive at Costco), and recipe guidance from our good friend Sherry, we have been churning out delicious concoctions to start many days. 

So the other morning we were cleaning up after a delightful mixed-berry smoothie and we couldn’t find the top of the milk container ANYWHERE. We knew it had to be there. We had JUST used it for goodness sake but it was nowhere to be found. Both of us kept moving in circles, opening drawers, lifting cutting boards, looking down the disposal and in the fridge but nope it wasn’t in any of those places. It had completely disappeared. But of course it hadn’t. After about ten minutes of futile searching and eye rolling, it turned up stuck under the top of the blender. We both laughed but we also sighed in virtual unison because this wasn’t close to the first time that we found ourselves feeling more scattered, disorganized and generally unmoored since Cassie’s diagnosis.

There were those times (many, many times) immediately post diagnosis, when Dan went to pay for something only to find that he had none of his credit cards, having left them scattered at different restaurants all across town. Or that time we nearly ran out of gas driving to a doctor’s appointment (thank God we noticed at literally the last moment). Or when we recently lost our checkbook for over three weeks only to find it in the same backpack we had already checked a dozen times. Cassie backed out of the driveway and smashed into our handyman’s car which she had just passed pulling in five minutes earlier. Dan went to get something out of the freezer only to leave a really good box of Sitka salmon (there’s a another product placement for you) out to spoil. The front door is often left open — that’s mostly Dan truth be told — and the degree to which we misplace our phones or get lost driving somewhere we know can’t be overstated.

Now some of this is of course normal (everyone loses their keys and phones right?) and even more so in the midst of a disorienting pandemic. That said, we are both pretty organized people and the frequency that we are losing, forgetting, misplacing and not remembering things is not typical for us. Or rather it is not typical to who we were pre-Metastatic Breast Cancer diagnosis. We sometimes refer to it as “cancer” brain and it impacts us both. It’s so easy to get frustrated and to channel the larger anxieties in our lives on to these smaller lapses. We  yell out of exasperation and beat up on ourselves with some regularity and one of us is constantly having to remind the other that this all makes sense. That of course we are going to lose and forget shit because our brains are otherwise consumed with big issues, concerns and fears. It’s requiring us to practice patience, gentleness and self-compassion (none of which come naturally to either of us) and to accept that this is just part of our “now” normal. It’s not a huge deal, especially compared to other challenges, but it’s a pretty constant pain in the ass and just one more reminder of how our lives have changed, in ways big and small, and how we have to practice changing (or at least better accepting ourselves) in response. 

P.S. The secret to Sherry’s smoothies is frozen bananas. 

The Cancer Couple’s Conundrum

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There was a lot of crying in our home over the first days of the new year. More accurately at the end of the days. When we would get ready for bed. Take off Cassie’s back brace and turn off the lights. There in the dark we found ourselves engulfed in sadness. Sad that the holidays were over. Sad that Cassie was still in a horrible back brace. Sad that we had little to look forward to. Sad about the pandemic and the state of the world (and that was before the coup attempt). And of course sad that on top of it all, Cassie still has Metastatic Breast Cancer. This unrelenting disease that is always with us.

We also felt disconnected. Dan was exhausted from days of holiday preparations and cooking. He needed to sleep and sleep some more. He wanted to take some long walks to clear his head. To lose himself in a book without talking to anyone. Cassie, while super understanding of Dan’s exhaustion and supportive of his self-care also needed him close and present. In times of greater sadness and loneliness it only makes sense that you want to be as close as possible to those you love most. But it also presents a conundrum that we have experienced at different points (usually very stressful points) since Cassie’s MBC diagnosis. 

How do you center both the care-getter’s need for more sustained connection at especially hard and challenging times and the caregiver’s need for greater self-care at those exact same moments?

Neither of us wants the other to suffer. Both of us are naturally inclined to sacrifice our own needs. Neither of us wants to make the other sad. Both of us see the need for Dan’s intentional self care and for deeper connection as a couple.

Figuring out how to balance all of this is a recurring and core conundrum for couples dealing with a late-stage cancer diagnosis. 

We’ve been trying to talk about it more explicitly — and not just late at night when we are tired from the day and the darkness is both literal and figurative. We are also working on getting back into more of a routine (abandoned since Cassie’s surgery). We try to think of the mornings as our “alone” or individual time — perfect for calling friends, walking, reading, journaling, going back to sleep or working out. Doing all of that may not be possible in the limited morning hours but some of it most certainly is and right now that’s more than sufficient. It also leaves the afternoons and evenings for doing things together — being more connected. 

Empathy. Intentional conversations. Developing routines and practices that work for both of us. We find ourselves returning to these tools over and over on this Metastatic Breast Cancer (and now back surgery) journey. Yet we also find ourselves forgetting them over and over again too. We now see that’s the nature of being in a perpetual crisis of unrelenting stress and anxiety. It’s easy to forget what you know. To lose sight of what’s working. To abandon routine. To stop sharing what you’re feeling.

So we re-learn as we need. Re-discover as we have to and remind ourselves that together we can do this. 

A Poem

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This poem by Rumi was shared with Cassie by a dear friend. It really hit home for us.

“The Guest House” 

This being human is a guest house.

Every morning a new arrival.

A joy, a depression, a meanness,

some momentary awareness comes

as an unexpected visitor.

Welcome and entertain them all!

Even if they’re a crowd of sorrows,

who violently sweep your house

empty of its furniture,

still, treat each guest honorably.

He may be clearing you out

for some new delight.

The dark thought, the shame, the malice,

meet them at the door laughing,

and invite them in.

Be grateful for whoever comes,

because each has been sent

as a guide from beyond.

— The poet Rumi, translated by Coleman Barks

Not gonna lie.  We are going through a rough time right now (and we were feeling that before the failed coup attempt this week). Our family and friends are life preservers, for sure. But, in the end, it is the two of us navigating rough waters alone. How do we do as Rumi says and be open to all that we are experiencing – both good and bad? How can we together as a couple manage all of the different “visitors” that are streaming the doors of our Guest House? We’re not sure. We know though that  this is the  challenge to focus on right now and we suspect that as Rumi suggests, gratitude may be the key to this house.