At Peace

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Last week we selected a burial plot. It’s in a beautiful and peaceful location in a non-denominational cemetery that overlooks our beloved Mississippi River. It’s just five minutes from our house and has great views of the downtown Minneapolis skyline. Best of all, for us, is that it’s dog-friendly and monument free (only in-ground grave markers allowed ) so it feels much more like a park than a cemetery. Did we mention it’s peaceful?

This marks the culmination of what’s been a long, and for Dan in particular, an emotionally arduous journey. Shortly after her diagnosis, Cassie announced that she wanted to go cemetery “shopping” so we did. It was raw and super heavy at first and we struggled to find a place that felt right to both of us (note many places that claim to be non-denominational really mean non-denominational Christian). But then, by pure happenstance, Cassie got lost on her way to our dentist and stumbled on this lovely cemetery established by the Masons in the 1920’s. She brought Dan over that same day and it felt more right to both of us than anything we had previously seen. 

At that point, we decided to slow our roll and visit it across all of the seasons. Each time we went it felt more and more like the place. We also appreciated learning that a founding Mason’s belief is that “everybody is equal in death” which is why they banned upright burial markers to avoid the trappings of wealth. We love that! We also loved the fact that the cemetery is now it’s own non-denominational nonprofit AND that it’s an Audubon bird sanctuary to boot. The fact that two MN governors (LeVander and Stassen) are buried there felt like a final positive sign given our active levels of political engagement as a couple. 

So we’ve known for some time that this is where we wanted to end up. The final step though was picking our specific gravesite which involved multiple visits, lots of walking around, jotting down the names of nearby graves and then looking at maps in consultation with the cemetery staff. It’s a lot. A lot of time. A lot of effort. A lot of emotional expense. A lot of sadness. It feels strange to be picking your final resting place when you’re in your early 50’s but it somehow also felt right. Maybe that’s because we gave ourselves the gift of time and didn’t force a decision while remaining focused on the overall goal. Maybe it’s because, since Cassie’s diagnosis, we’ve become used to talking about dying and death. Maybe it’s because it actually makes sense to do this when you are younger and not immediately before or after one of you dies. Or maybe it just feels right because we both feel at peace with where we landed (pun intended). 

Yes we both felt a little extra sad last week (especially Cassie). But we also feel a sense of closure and an ability to now let this part of the journey go. We are both grateful that Cassie has created her “death plan” and that this part of her plan is now complete (for more details on that topic see 8/24/2020 blog post and this template Death Plan Work Sheet.August 2020). Dan is still promising to finish (well honestly to start) his own death plan and seeing the sense of peace that Cassie has achieved is inspiring and motivating.

Honestly, the hardest and most beautiful part of this whole finding your burial site experience has been doing it together. Hard because it forces you to actively contemplate the death of the person you love most. Beautiful because you get to hold hands and be scared, vulnerable and connected with each other. 

Birthday Wishes

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Today’s my birthday. For the last ten years I’ve shared a celebration with our niece Sylvia whose birthday is just days after mine. We usually have apple pie (my favorite) AND birthday cake (though every year they somehow get my name wrong on the cake — Don, Denny, Donnie, etc. and I’m beginning to think that’s not a coincidence).

Anyway, historically when I’ve blown out my birthday candles, I’ve wished for the Cubs to win the World Series. Since Cassie’s Metastatic Breast Cancer diagnosis, however, my focus has changed. For the past three years, I’ve wished for more time together and that continues to be my deepest desire. This year though, I’ve decided to be more proactive and not just hope that Cassie gets more time but to do something about it.

So, for my 54th birthday, my wish (and request) is that people will join us in supporting METAvivor the only nonprofit in the country that exclusively raises money and advocates for Metastatic Breast Cancer research.  You can contribute to our METAvivor fundraiser through this link:

After Cassie’s diagnosis, we were shocked to learn that only 2% of all funding for breast cancer research is dedicated to metastatic research even though nearly 30% of the people diagnosed with breast cancer will unfortunately experience a metastasis. That’s why the median survival rate for women with MBC is still only five years. This disparity in funding research is wrong and has to change.

That’s where METAvivor comes into the story. It’s a wonderful nonprofit founded and led by women with MBC. 100% of the money they raise goes directly to metastatic research and since their inception METAvivor has funded over 17 million in research grants. Cassie and I are both active volunteers and I co-chair METAvivor’s Advoacy Committee. Our goal with this fundraising campaign is to raise at least $10,000 (and hopefully a lot more) by the end of the year and Cassie and I will match the first $5,000 in contributions.

So this year my birthday wish is that we begin to change the gap in funding metastatic research together. Ten years ago the drugs that are keeping Cassie alive didn’t exist and research led to their development. Please consider contributing to our METAvivor fundraiser so new research can likewise be supported. Maybe you’ll also consider learning more about METAvivor and even signing up for the Stage IV Stampede our signature advocacy event which this year is being held virtually during the entire month of October.

Thanks for helping my birthday wishes come true.

PS: Here’s the full link again as it can be tricky to find when embedded in the text.  https://donate.metavivor.org/fundraiser/3508769